Report states Childrens views should shape how research is conducted

A new report by the Nuffield Council on Bioethics calls for a change in culture across all areas of children’s health research, so that children’s and young people’s views and opinions can help to shape how research is prioritised, designed and reviewed.

The report stresses that unless ethical concerns about asking children to take part in research are addressed, understanding of childhood disorders and ability to provide evidence based care will remain limited.

Simon Dengri National Institute for Health Research (NIHR) National Director for Patients and the Public in Research and Chair, INVOLVE, said:

"The report is a welcome addition to the many voices urging the community to get better at involving young people in research, whilst also recognising the excellent work that's already gone on in the NIHR networks and elsewhere. We're already talking to people in the field to see how we might ensure children's voices help shape the health research that affects them."

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More articles     Posted on: 19 May 2015