Adviser’s name not provided

As I look back at my jobs etc. since I left school they have all been encouraging people to achieve their goals or helping them to do so.  Outside of work I taught people to read.  I went to an Open Day that CLAHRC NWC held at Blackburne House a few years ago.  How I got the invite I don’t know.  I studied at Blackburne House in the ‘90s.  I knew one of the speakers, Dr Katy Gardner.  I was enthralled with every speaker from T Wilson to Katy.  I left my email address hoping to get involved.  Unfortunately every time I had an email about opportunities I was busy working and could not apply.  Last Nov (2017) I woke with pain in my arm.  My GP and I thought I’d pulled a muscle so onto SSP I went.  This went on for 6 months, while everyone tried to fix my right arm.   It is a trapped nerve in my C8 vertebrae.  At this time I was working in a care home which I had to give up.

In January 2018 I received an email offering an opportunity to be involved in a project which was reading and mental health.  I applied and got a phone call from Clarissa asking if I wanted to join a writing group – involving the Household Survey.  I said yes, I got the date, time and room at the Waterhouse building.  So off I go up and down in lifts and staircases until I found B225.  I walked into a room a little late (something I never am).  I was told I looked like a rabbit in headlights.  I was given a seat and a cup of tea so thought I’d stay.  It was so interesting and as I didn’t know who was an academic or a PA except Terry C and Jane Shelton I felt uncomfortable.  I contributed a little.  If I have something to say, I do.  

I attended my 1st Adviser Forum in Warrington.  The atmosphere at the Forum was welcoming.  I sat with Terry and Tim, friendly faces from the writing group. The group discussed loads of things, I contributed a litte.  Since then I have been involved in a lot of different groups, most leading from HHS.  A couple of things that are waiting for funding so I can’t say what they are.  I have enjoyed this year.  I am on 3 groups from HHS and Adviser subgroup.  I spoke about being a public adviser at PPP session at Haydock race course.

I have travelled to sunny Blackpool and it threw it down and was very windy, Lancaster, Warrington, Preston and Liverpool/ 

I hope I have made valid contributions, and hopefully changed policy in a little/big way.

I thought I would find describing how and why I became involved ? I waffle but find it hard to write about myself but once started it wasn’t that bad.  To start I pretended I was being asked questions.

 

Paula Goss

I’ve been involved as a public adviser since July ’18.  I’m on several groups, writing groups 2 and 3.  Self-harming, Altzhmers [sic] group, and HIAT.

I have found the experiences of being on the groups really interesting as I have lived and still living what CLAHRC are trying to change and improve.

I’m a fulltime carer for my Mum who has Altzhumers [sic] so I feel I can make a change, whether it’s a pebble making a small ripple.  I feel I can voice what it’s really like for the family and the struggle we have 24/7.

I’m also a Mum of 3 children who live with special needs, aging from 28 yrs to 15 yrs.  So for years I have had to fight for my children’s needs and trying to change how systems are put in place.  I’ve been a governor for 16 yrs in special needs schools, primaries, and a nursery, plus been on a parent forum representing parents of disabled children with the LCC.  I’ve found being on the groups less intimidating than I though.  My friend introduced me as I had a lot to say and knows I’m not shy in speaking my mind when I need to.

I do feel sometimes the academics forget and speak in jargon.  If the papers are to be public then this needs to be remembered.

What I have learnt is everything is a postcode lottery in health, education and life in general.

I asked the question “These papers that are being produced, what will happen to them?  Will they be left on the shelf?”  The answer was “No” so I really do hope changes do happen as its lives that will be changed. 

 

Adviser’s name not provided

I am a co-author of an article “A Systematic Review of Barriers and Enablers to South Asian Women’s Attendance of a Symptomatic Screening of Breast and Cervical Cancer” published in the open online BMJ, June 2018. 

I was interviewed by BBC on the Systematic Review of South Asian Women Breast and Cervical Cancer by Victoria Derbyshire.

After I have been involved in many activities, I have experience in the following:

  • Integrated Healthcare
  • Evidence Reviewing
  • Advisory Panel Membership

I participated in CLAHRC Internal Evaluation and also PPP team evaluation.

 

Adviser’s name not provided

Determination and interest for best practice in health and social care.

Survivor of the mental health system.

Public Adviser for the implementation of the LIT for the National Service Framework Blackpool Fylde and Wyre. 

Member of Lancashire Advocacy.

Advocacy in mental health.

Involvement (20 years) UCLAN.

Member of LUPIN, Lancaster Uni (10 years), public involvement in clinical psychology.

Retired governor, Lancashire Care (2015-2018).

North West representative NIHR, London.

Invitation via UCLAN, Prof Mick to the very first consultation meeting for the future organising of CLAHRC,

A better understanding of systems and academia at its highest level.  Continuing to have a voice, especially in mental health, and the continuous need for change.

I think there is no issues that have been problematic when being with academics.  My personal issues have been lack of confidence and at times not understanding academia, feeling unwell periodically has been a problem.

 

Adviser’s name not provided

Meetings have been very difficult at times because some contributors have felt their experiences have not been taken into account; many haven’t been listened to, and decisions are made by IT specialists, managers and accountants, and they and their experiences have been discarded as irrelevant.  

A working lifetime in health-related areas.  Personal family experiences of difficult health matters.

How did I become involved? – A NIHR health meeting in York.

Influence I’ve had? – I feel strongly about accountability so it’s important that those who are recipients of care have an opportunity to contribute to health service developments.

Personal impacts – I’ve met and been able to relate to some splendid people I feel privileged to have known.  We’ve shared and sometimes made lasting relationships outside the sphere in which we’ve met originally.

Have you been listened to? – On the whole, yes.  Occasionally.  I feel my contributions has not been welcomed.

Do you feel you have had an impact? Sometimes very much so, other times I’m less sure.

 

Mo Thomas

I’m a mother to 3 children, grandmother to 6 grandchildren and I’m still married to Rob a bus driver with Arriva (he’s a lucky man).  I’ve suffered most of my life with feelings of un-ease.  I always felt like a square peg in a round hole.  Wanting to help others and forgetting about myself. 

I joined CLAHRC in 2016 after being on a programme looking at differences between Bipolar disorder and Borderline Personality Disorder with Professor Rhiannon Corcoran and consultant psychiatrist, Dr. Agerwol.

This was the beginning of my recovery after being diagnosed with bipolar.  Many opportunities and lovely people to work with who help make you feel yourself.  The opportunities I’ve been given to enhance my education and to research many topics of my interest looking at health inequalities in many different areas.  As we know we live in a postcode lottery.

My background is working with children with special needs, nursery-nurse, also children’s mentor.  I left this job to look after my father with Alzheimer’s which I did for 18 months.  I loved looking after him.  It gave me so much insight into Alzheimer’s and how to keep a happy home and it taught me how carers become carers from an early age.  My son was a great help.

I feel better for being here in this group.  I’ve been away from the groups for a while (wasn’t too well in myself) and lots welcomed me back and said I’ve been missed and I really felt it.