Roy helps puts Dementia Action Week under the spotlight

From Monday 20 May to Sunday 26 May, it's Dementia Action Week (DAW) – a week that unites individuals, workplaces and communities to take action and improve the lives of people living with dementia.

The Collaboration for Leadership in Applied Health Research and Care North West Coast (CLAHRC NWC), has produced in-house a series of five videos to be shown over DAW, hosted on its Youtube channel.

Broadcast via the social media platform Twitter, the short clips feature the organisation’s Alzheimer’s Society Knowledge Exchange Fellowship, a piece of research managed by CLAHRC NWC Research Manager Dr Clarissa Giebel.  It will also feature public advisers discussing their role in the research and a personal insight into the condition from ‘Roy’ (pictured) whose story will develop over three of the videos as he discusses his “vendetta” against the condition while discussing  the hope he retains for a cure.

“The aim of the study is to better understand the socioeconomic predictors of accessing and using formal dementia care services (such as paid carers, support groups, clinical support, and transport) after a dementia diagnosis is made, and to understand the experiences of people from advantaged and disadvantaged backgrounds”, said Dr Giebel. 

“This is a comparison between England and the Netherlands and is funded by the Alzheimer’s Society.”

The study has two strands: one questionnaire mail out study/hand out study and one interview study. Data will be collected in the North West of England and in the Netherlands.

Professor Mark Gabbay, Director of CLAHRC NWC, said “These informal videos offer an insight into the work we are conducting for our partners who treat Roy. By collaborating with the Alzheimer’s Society and getting an insight into health inequalities across the two countries we can identify how we can reduce the inequalities gap for those experiencing them in Liverpool, the North West Coast or the Netherlands. Exchanging experiences and collaborating on this important piece of research will benefit many of our partners, those with dementia and third sector agencies, especially those providing additional support in the community.”

It is anticipated that questionnaires will be handed out by clinicians (GPs, memory clinic staff, outpatient clinics) to carers of people with dementia. People will also be recruited via care homes in addition to Join Dementia Research.

The study is expected to commence 1st of July and will last 12 months.

For futher information about the study please contact Dr Clarissa Giebel, PhD Research Manager (CLAHRC NWC Knowledge Exchange Theme) on 0151 794 9966. 


More articles     Posted on: 20 May 2019