Care After Presenting with Seizures (CAPS)

As part of our (four) programme themes, Managing Complex Needs aims to implement a step change in the delivery of care for people with complex needs arising from long term conditions. This will result in services that are more person-centred, cost effective and that will improve quality of life for patients and their ability to undertake gainful employment.

Our current project, CAPS (Care after presenting with seizure) investigates attendances at Emergency Departments in the UK.

More than 50,000 attendances at Emergency Departments each year are with a seizure and of these, half are admitted.

Many patients attend multiple times and yet the National Audit of Seizure Management in Hospitals (NASH) shows that many are on suboptimal therapy and that only a minority reach the specialist service that could prevent further seizures, and implement strategies to avoid hospital attendance should seizures occur.

The Cheshire/Merseyside data show that only 8% of people with first seizures meet the NICE (National Institute for Health and Care Excellence) recommendation of a specialist review in two weeks.

The Care after Presenting with Seizures project aims to find out if actively helping patients to be attend an early two week appointment will make the changes that reduce readmissions, re-attendances and improve quality of life.

The research means we will set up a dedicated nurse in each of three hospitals in Merseyside, who will identify all who attended the Emergency Departments in the previous 24 hours with a seizure (regardless of whether or not they were admitted) and offer an appointment at a seizure clinic within the next fortnight. 

If you would like to find out more about our work in the area, please contact the Theme Leader, Professor Tony Marson via

Read more about the CAPS project